Met with my Oncologist this morning and he said there is nothing cancerous showing on my Petscan so I am free of the dreaded C word right now! The other good news is that I can get the annoying port removed too - I had thought from reading UK and US forums that it would have to stay put for a year but no, not here, so that's brilliant as I find it quite uncomfortable at times. There was no sign in my scan of a parastomal hernia either as I was concerned as I have a bit of a bulge above the stoma which wasn't there to start with. I also have an appt with a pain management doc to discuss my problem butt as I still can't sit without donut cushions, and can discuss possible drugs that might help with the neuropathy with him (although according to the Onc they don't usually work). My view is that they are worth trying. I can't type properly any more due to it so that's the only blot on the horizon; thank goodness for my Kindle as tapping out text with my stylus is a lot easier and I can use my mouse OK so photo processing etc isn't a problem.
I have to have another colonoscopy in two months to check for polyps which are pre cancerous things which can be removed at the time of the colonoscopy and if they do find any I would need to have a colonoscopy every year, if not then every 3 years or so. I'll be seeing the Onc every 6 months and will have either an ultrasound or a petscan before each appt with him.
So for now I just breath a sigh of relief and let time heal me.
A Painted Lady, just because. :-) |
I can't believe a week has gone by since I last blogged, but I've been tired and lethargic again with odd bouts of energy interspersed with spending time in bed sleeping during the day because I've been wide awake and reading during the night, and feeling generally blah. I suppose it is not surprising as the previous week I was full of energy and got out and about quite a lot. I am not too bothered about feeling like this as I know it's normal now (although it is still quite frustrating!).
I do have photos to share but wasn't in the mood and I haven't read any of your blogs either - I will rectify that as I'm feeling a lot happier right now, so I will catch up with your blogs and my own very soon. I just wanted you all to know the good news and to thank you for the support you have given me over the last year - it has helped massively so thank you all so much. xx
Mandy I am so happy for you. I don't even know you but I have tears running down my face. Such fantastic news.
ReplyDeleteOh you are such a sweetie - I'd better not die then, what on earth state would you be in then! Thank you SO much. xx
DeleteOh Mandy - I am so very very pleased for you. You must be feeling so relieved and happy. Wonderful news indeed.
ReplyDeleteYup, huge relief and big smiles here! Thanks so much Caroline. xx
DeleteSuch wonderful news! I am so relieved to hear it Mandy, and a gorgeous photo too. xxx
ReplyDeleteThanks so much Bonnie, and great to hear from you. xx
DeleteThat's such good news Mandy, I'm so so pleased for you. Xx
ReplyDeleteThanks very much Deb. xx :-)
DeleteThat's great news Mandy :-)
ReplyDeleteThank you Ian. :-)
DeleteWhoop! Whoop! Whoop! I am dancing a Very Happy Jig for you here! Excellent news my friend- I am SO PLEASED for you! xx
ReplyDeleteHeehee, bet your jig is better than my granny shuffle, but who cares? ;-) Thanks so much CT, you have been a great support over this last year. xx
DeleteGreat news Mandy.
ReplyDeleteCheers Roy! :-)
DeleteI haven't been commenting on your health updates but HAVE been reading and following them with interest Mandy. This one demands that I do add my little voice though and so would like to say how pleased and relieved I am for you. You have been so stoical throughout this ordeal and now that you have the all clear, better times are just around the corner I am sure.
ReplyDeleteJJ.
Thanks so much, JJ. I appreciated your comments when you did make them but it isn't necessary to always put it in words. Chatting about our little critter friends is much happier subject anyway! xx
DeleteThat is fantastic news Mandy, so pleased for you and K, you have both been so brave through all this and an inspiration to anyone who read all your blog posts about your treatment.
ReplyDeletePhilippa xx
Thanks so much Philippa, I've really appreciated your support. I feel very relieved but also like it hasn't sunk in properly yet! :-) xx
DeleteWonderful to hear the good news Mandy!! You must have such a sense of relief. I do hope you find a solution to the pain issue soon. Take care,
ReplyDeleteWendy xox
Thanks very much, Wendy - very relieved indeed. xx
DeleteMessage to you from Ma, via my email : 'I was so thrilled and relieved to read Mandy's news - what a wonderful relief for her and her husband. Feeling such a sense of relief will go a long way on her road to recovery. What an amazingly brave lady - so generous to share with everyone too. She always came over as so positive and forthright and a wonderful example to so many people who are at the beginning of such a frightening journey.' Here here! xx
ReplyDeletePlease thank your Ma very much from me, CT. I really appreciate that she took the time to send a message via you, and I am chuffed by her lovely words. xx
Deleteoh how wonderfully encouraging! Good news!
ReplyDeleteThanks Diana - we needed some good news in this annus horribilis and it was the best we could get!
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